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Post by Bibi on Aug 20, 2008 11:15:55 GMT -5
I'm really sorry about your nephews' situation, but if they are asking for your husband is because they like him a lot, and it is a great thing.
I think God will show you the right direction to go, and your husband will find something to relief his problem.
You're in my prays!!
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Post by mrsvalden on Aug 21, 2008 22:17:04 GMT -5
I'm really sorry about your nephews' situation, but if they are asking for your husband is because they like him a lot, and it is a great thing. I think God will show you the right direction to go, and your husband will find something to relief his problem. You're in my prays!! Thanks so much, Gabi. You are a real dear.
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Post by mrsvalden on Oct 3, 2008 23:13:03 GMT -5
Well, we went to the neurosurgeon on Sept. 22nd, but I'm just now writing about it, because I was pretty disappointed after our visit. I've been dejected after the appt., so that's a big reason I've been more quiet lately (along with being so busy at work.)
Here's the post I put on my MySpace blog.
On Sept. 22nd, Richard and I went to the neurosurgeon to see if he thought the cyst on Richard's brain might be causing Richard's depression. We've known about the cyst for 4 years, and in the back of my mind there was always a little hope that it might be causing it, and therefore if it was taken care of, then perhaps Richard's depression would be relieved.
But the neurosurgeon, in no uncertain terms, told us the cyst is definitely NOT causing the depression. He was a jerk, and acted like I was silly for evening considering the idea. He was almost dismissive of us. I don't tend to like surgeons as it is, and this guy was a real a-hole.
He explained that he can tell that the cyst has been there since Richard was born, because it's eroded into the skull. But he said he can also tell that it's not causing pressure on the brain, because there is no distortion in the middle area of the brain. Only on the edge where the cyst is. If it's not pushing on the brain elsewhere, then it can't be causing problems. It all makes sense. And Richard accepted his answer. And I think he was fine with it…he didn't figure it was causing it and didn't have the hope that I did. He lost hope a long time ago.
But I was so disappointed. Almost as devastated as when the electroshock treatments didn't help 4 years ago. I know it sounds strange that I wanted the cyst to be causing him problems…but if it was, and it could be fixed, then maybe he could be well. But now…there's nothing else to hope for except a new treatment. So that's my hope now.
I was being a baby about it for a while, hence the reason I didn't write about it until now. It's just devastating to know the person I love more than anything else in the world is in so much pain and wishes he was dead every minute of the day. Depression sucks. More than you could ever imagine (except for those that have gone through it for over 13 years...then you know what he's going through.)
Prayers and positive thoughts are always welcome. I'm afraid we aren't very positive anymore after all the disappointment. So we could use other people being positive for us.
Thanks much, my friends.
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Post by Little Pet Crazy on Oct 4, 2008 6:48:44 GMT -5
Carol you are definitely in our thoughts and prayers. I despise doctors sometimes. I got similar treatment for years. Its nothing just take this band aid and never bothered to seek the real reason for my illness. Big hugs to you and Richard.
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Post by liquid07 on Oct 4, 2008 10:06:03 GMT -5
Carol, You and Richard are in my prayers. While I can't relate to what you all are experiencing directly, I can imagine your pain.
Don't give up hope that there may be some treatment out there that could turn things around. Check out the Mayo Clinic in Jacksonville FL, I think they also have other facilities but they are really heavy into modernized treatments.
Good Luck sweetie and know that we are all here praying for you both and we are here WHENEVER you need a Friend!!!
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Post by mrsvalden on Oct 4, 2008 16:59:35 GMT -5
Thanks, my friends. I really appreciate your words, thoughts, and prayers.
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Post by moretoys4you on Oct 5, 2008 0:30:37 GMT -5
Wow Carol...I am so sorry to hear about what you and your hubby are going through. I know about having depression and how bad it can get, and it is horrible thing to go through! My girlfriend was just telling me today that her son has an arachnoid cyst in his brain. They said it did/is doing no harm but after reading this I am so curious. I think her son at 3 1/2 years old suffers from an aggression problem and possibly bouts of depression. It seems as if he will have ADHD severely. He is generally a good kid but throws severe temper tantrums, several times a day, sometimes up to 20 in a day. It is crazy. I guess he was also born with the crossed eyes, some eye muscle problem he had to have surgery on, low white blood cell count and sleep apnea. Poor kid. Anyways, I know she said that these cysts are supposedly very common in men. Humm. Well, good luck and please keep us posted! XOXO
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Post by moretoys4you on Oct 5, 2008 0:40:18 GMT -5
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Post by moretoys4you on Oct 5, 2008 10:36:12 GMT -5
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Post by mrsclean987 on Oct 5, 2008 10:42:42 GMT -5
Hummmm....I guess it's time to get a SECOND OPINION!! I knew of a doctor once that treated a friend of mine for MONO for several months. The parents decided to take him to another doctor, only to find out he had leukemia!! Gawd! He died 2 months later. I wish we were more like cars, ya know?! Just plug us into a machine that could determine EXACTLY what was wrong. I'm a dreamer. Smoochies and hugs to you Carol!! Dana - you're awesome for looking all this stuff up too! Boodie
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Post by mrsvalden on Oct 5, 2008 12:20:51 GMT -5
Yup, I found that during my research. And I found a few other medical journal articles that mentioned it very briefly. Not just depression, but other psychiatric problems like schizophrenia, bipolar disorder, anxiety...but there is such little information out there. I had all that info with me that day, but the surgeon was so dismissive, I knew that if I brought it out, he'd just brush it aside. Then I would've gotten angry, and probably would've made a scene, so I didn't push it. If anything, I'll talk to a different neurosurgeon. I think there are a few others in town. I might not make Richard go with me, because he has such trouble making himself go to these doctor appts. anymore. He's so tired of rehashing everything. But if they would talk to me alone, then maybe that would be ok. I'll write more later, Dana, about what I found. Thanks for sharing your research. I'd been to that website as well. Most of the people on there talk about the physical symptoms, which Richard has none of. There is also a form connected with that (I believe it's www.arachnoidcyst.net/forms.) I'll check for sure later. I need to get somewhere. Thanks again!!
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Post by mrsvalden on Oct 5, 2008 12:23:02 GMT -5
Thanks, Boodie!! I really do want a second opinion. But I hate to drag Richard through more. I wonder if they'd talk to me alone. Or I could make the appt. for Richard, and just show up myself. What are they going to do? Throw me out? Hmmm...lots to think about.
I love all of you on here for caring about me so much. You are the best group of friends I have!!
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Post by LPS NANA on Oct 6, 2008 17:59:53 GMT -5
Oh Carol. I am sending big hugs to you and your hubby. Stay positive cuz Richard needs you to lean on. I know it is very hard to watch the one you love suffer and you feel so helpless. I am here for you if you need to talk
BIG BIG HUGS
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Post by mrsvalden on Oct 6, 2008 21:53:55 GMT -5
Oh Carol. I am sending big hugs to you and your hubby. Stay positive cuz Richard needs you to lean on. I know it is very hard to watch the one you love suffer and you feel so helpless. I am here for you if you need to talk BIG BIG HUGS Thanks very much, Kim. I really appreciate it! I must say I always stay positive when I talk to Richard. It's just when I talk to others or in my head that the doubt and fears creep in. Thanks again, to all my friends!
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Post by Bibi on Oct 7, 2008 9:05:47 GMT -5
Oh God, I'm always behind...
Carol I wish that you and your husband can find some positive doctor that can really help to solve this problem so both of you can be happy again.
I care so much about you that definetively you and Richard will be in my prayers.
God bless you!
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